Our Mission, Vision
To support and enrich the lives of individuals and families from the UK and around the world who are affected by the following Microcephalic Primordial Dwarfism subtypes:
- PD Non Specific
- Ligase IV
- Meier Gorlin Syndrome
- Seckel Syndrome
We provide support and encouragement to these individuals and their families in any way which is charitable in accordance with the law in England and Wales.
In addition to the above, we endeavour to eliminate all the stigma, mystery and any discrimination towards individuals affected Microcephalic Primordial Dwarfism by promoting a positive attitude via this site, educational events and TV programs throughout the United Kingdom and the rest of the world.
Our vision is for a society where all individuals affected by Microcephalic Primordial Dwarfism (regardless of age, disability, impairment, health, capacity) are totally independent, valued, effective, equal, fully engaged members of society and accepted for who they are and not what they are.
At the forefront of what the Walking With Giants Foundation does, is our belief is that while we are all different, every human being has the right to live the life of their choice and to be treated with respect and dignity, regardless of their impairment, age or health status.
We strictly follow the Social Model of Disability that holds that it is not the individual’s impairment or illness that disables them, rather it is the barriers that society creates that are disabling.
We strive to work with each person and family at their pace, valuing and celebrating their skills, experiences and enabling them to use those abilities to get what they need to reach their full potential in life and live independent lives.
Underpinning all our services, are the values that the Walking With Giants Foundation trustee, staff and volunteers embody:
- Person-centred: Working at the individual’s pace and to their agenda rather than expecting people to fit in to the services we provide.
- Quality: Deliver services to a high standard; constantly working to improve the services we offer.
Striving: Going that “extra mile” to make sure that the individuals and families we support get the services they need to be independent and in control.
- Holistic: Working with all aspects of a person’s life – social, health, family life and work.
- Collaboration: Working with individuals and other organisations to achieve positive outcomes for the individuals and families we support.
- Commitment: Working together as a team to ensure that we deliver our vision.
We Need Your Support!
We do not receive any statutory funding, so we totally rely voluntary donations from the general public, grant making trusts and foundations, businesses (small and large), schools, clubs, societies, rotaries, and lodges.
With your help, we can provide direct support, research, vital information, advice and services to help individuals and families reach their full potential in life in a world that is not made for them!
We help remove the isolation families and individuals affected by Microcephalic Primordial Dwarfism feel by bringing them into contact with other families, individuals and provide opportunities to meet, so they can come together to create friendships and share experiences.
We support families and individuals living with Microcephalic Primordial Dwarfism to build lasting, positive family memories and strengthen their family relationships especially during times of crisis and isolation.
Provide medical and non medical information in easy-to-understand terms to help individuals, parents and other interested parties (for example medical professions, education providers, social workers and the general public) to learn more about Microcephalic Primordial Dwarfism, available treatment options, current research and the social barriers.
We provide parents with access to doctors, scientists and other medical professionals on our Medical Advisory Board who are actively conducting research into the causes of Microcephalic Primordial Dwarfism, along with helping parents obtain a diagnosis and provide them and their child’s doctors with information on how to manage these rare conditions and the life limiting and life-threatening underlying medical issues these rare condition bring.