The Walking with Giants Foundation

Are you a family with a child, or an adult affected by the following subtypes of Primordial Dwarfism:

• PD Non Specified
• MOPDI
• MOPDII
• MOPDIII
• MOPD Unknown
• Meier Gorlin Syndrome
• Seckel Syndrome

The Walking with Giants has been set up to help families and individuals affected by the above conditions.

The levels of resources and services provided are:

• Basic advice and support to remove the isolation families feel
• Support through crisis's
• Contact with other families
• Peer support
• Linking medical experts, researchers and families
• Referrals to medical experts and research studies
• Initiating and conducting research
• Access to private family area on our website
• Conferences/workshops

Additionally through our grants making program and depending on our level of funding and priority, we try to help fund (partially or in full):

• Medical care and costs
  
• Adaptive Equipment
• Transportation
• Accommodation
• Household Goods (washers/dryer/fridges)
• Toys
• Clothes
• PC, laptops, printers
• Furniture
• Education/Training funding
• Employment opportunities
• Driving Lessons for non driving parents to help with transportation
• Short breaks for respite
• Holidays
• Funding to attend attend annual conventions and meetings

Any families wishing to receive support need to send an email to This e-mail address is being protected from spambots. You need JavaScript enabled to view it stating:

• Who is affected
• Their age
  
• What form of Primordial Dwafism do they have
• What connection do you have with the affected person (i.e mother, father, carer or guardian)
• What country are you from

On receipt of your email, we will send you out a family registration form for you to complete.

In addition to this registration form, we also need official confirmation of the diagnosis. This will normally be a current letter (or email) from the the affected person's main doctor or other suitable qualified medical expert.

This letter or email must be addressed to:

Sue Connerty

Walking With Giants Foundation

Maghull

United Kingdom

L31 6WW

If sending by email please send it to: This e-mail address is being protected from spambots. You need JavaScript enabled to view it

We understand this may take several weeks or longer to obtain, in the meantime we will still process the application . However if after several months we have still not received a letter or email from a doctor, we will have to cancel the registration and withdraw all support until the letter is received.

Once we receive your completed application form (can be scanned and emailed) and process it, we will then get back to you to confirm registration. Please note this may take 7-10 days.