One of the The Foundation most important aims is to create a central medical review board to provide a service whereby individuals and families effected by MOPDII can be monitored nationally and information about the condition and associated symptoms can be relayed to all concerned.

The Foundation is pleased to have the following doctors and specialists interested in facilitating the creation of the Medical Review Board.         

Dr Stefan Spinty (Neurology) - Chair

Royal Liverpool Children's NHS Trust
Alder Hey
Eaton Road
Liverpool
United Kingdom
L12 2AP

Dr Lynn Greenhalgh - (Geneticist)

Royal Liverpool Children's NHS Trust
Alder Hey
Eaton Road
Liverpool
United Kingdom
L12 2AP

Dr Michael Wright - (Geneticist)

Institute of Human Genetics
International Centre for Life
Central Parkway
Newcastle upon Tyne
United Kingdom
NE1 4BZ


Dr Andrew Jackson - (Geneticist)
MRC Human Genetics Unit
Western General Hospital
Crewe Road
Edinburgh
United Kingdom
EH4 2XU

If there are any doctors, consultants and geneticists who have a interest in MOPD/Primordial Dwarfism or has a individual with MOPD/Primordial Dwarfism under their care that would like to participate with the Medical Review Board, we would love to hear from you.

Please write to:

Dr Stefan Spinty
Neurology Department
Royal Liverpool Children's NHS Trust
Alder Hey
Eaton Road
Liverpool
L12 2AP