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Welcome

Picture Of Charlotte (Age 2) and Alex (Aged 4) Aug 2009

We are a voluntary non-profit making registered charity (Reg No 1123246), set up to enrich the lives of individuals and families affected by the following Primordial Dwarfism subtypes:

 

PD Non Specified

MOPDI

MOPDII

MOPDIII

MOPD Unknown

Meier Gorlin Syndrome

Seckell Syndrome

 

We will endeavour to provide support and encouragement to these individuals and their families in any way which is charitable in accordance with the law in England and Wales.

 

In addition to the above, we endeavour to eliminate all the stigma, mystery and any discrimination towards the disorder by promoting a positive attitude via educational awareness TV programs throughout the United Kingdom and the rest of the world.

 

We try to achieve this via this web site, along with the  'Potentials Foundation' and Primordial Dwarfism.Com in the USA.

 


 

Supporting Us

 

There are many ways you can support us to help us achieve our goals. Below are 3 of the main ways you can support us online!

 

If you want to find our more information about how you can help us further, please visit our 'Support Us' page.

 

One of our main goals is to bring individuals affected by Primordial Dwarfism and their families from around the UK and the rest of the world together to provide support and education, along with giving the children and their siblings something to smile about.

 

Every year we intend to hold an annual convention where families, specialists and other interested parties (Local and National Health Authorities, Education providers and Social Services) attend to gain knowledge and a common understanding of the conditions and environmental issues that afflict the children and also the parents and siblings.

 

In additional to this we try to treat the children and parents to 5 days of fun and excitement without them having to worry about anything.

 

The video below documents the 2009 convention.

 

 

The program for the convention can be viewed here:  convention_program_2009.pdf

 

To view this document, you will need Abode Read installed. Please click on the following link: http://get.adobe.com/uk/reader/

 

We are planning this year's convention, we need your support!

 

The WWGF does not receive any government support, all monies raised are through the support of the general public. If you feel that we are worthy of this support you can make a donation via JustGiving or why not fund raise and at the same time spread the world about our wonderful work and cause!

 


 

JustGiving

 

If you would like to make a donation via 'JustGiving' to the WWFG click on the "Donate Online" button below:

 

Donation Online button

 

If you would like to support the WWFG by fundraising, why not do it through the "JustGiving" website.  Click on the "Create a fundraising" button below, to start fundraising:

 

Donation Online button


 
PD Family Login
Only individuals and family members affected Primordial Dwarfism can access certain parts of this site. To register as a user, please click on the "PD Only Families" link at the top of the page and follow the instructions on the page.



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