I have a son called Muhammed who has MOPD2 it was through the WWGF website that I made my first contact with the foundation 5 years ago. Through the foundation we have meet so many families affected with Primordial Dwarfism and learnt so much from all the families around the world who are constantly in contact today. Meeting the specialist doctor at WWGF conventions has been a tremendous help for us.
Last year when we had difficulty filling Muhammad's DLA forms the foundation helped completing the forms with us. Also this year the foundation helped towards Muhammad's special educational needs application when it was refused by the local authority the WWGF helped in the appeal process,which was successful.
I looking forward to meeting everybody again soon.
Ali (Muhammed's Dad) - England - 2013