Primordial Dwarfism Family Profiles

Within the pages in this section you will find information on some of the families who are supported by the WWGF. It includes their personal experiences and some general feedback about the support given to them by the WWGF.

By providing this information it allows new families whose child has just been diagnosed as having a form of Primordial Dwarfism a first hand understanding of what it's like living with Primordial Dwarfism. From the earliest days and through the years ahead. It also shows them that they are not alone and their is a network of families out there to help and befriend them

Additionally it allows our supporters and the general public to understand how crucial an organisation like the WWGF is and what the support means to the families.

Permission has been granted from the parents and individuals to use the information and pictures within this area of the WWGF website.

Our Aims

Hold a yearly international event to bring families together to celebrate life and allow them to meet experts from around the world.

Provide trips out and events during the annual convention and also breaks for families needing respite.

Source out and financially assist with specialist equipment, toys, custom made clothes, costumes and furniture.

Create opportunities to allow individuals affected by Primordial Dwarfism to reach their full potential in life.

Facilitate research into the causes of Primordial Dwarfism and the complex life threatening medical issues faced by individuals affected by Primordial Dwarfism.

Raise awareness amongst the general public, medical professions, support services and other interested parties.

Facilitate family support meetings and connections to highlight life issues, concerns and remove the isolation families feels.

Identify those with Primordial Dwarfism and bring them into contact with other individuals, families and specialists.