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Living With Primordial Dwarfism

The pages in this section relate to what it is like to live with a form of Primordial Dwarfism.

They cover general issues, like education, nutrition, lifestyle, social, environment and also public perceptions.

Hopefully they will give the general public, educational institutes, social services, employees and more importantly the next generaton of families a better understanding of living with Primordial Dwarfism is like.

Our Aims

Hold a yearly international event to bring families together to celebrate life and allow them to meet experts from around the world.

Provide trips out and events during the annual convention and also breaks for families needing respite.

Source out and financially assist with specialist equipment, toys, custom made clothes, costumes and furniture.

Create opportunities to allow individuals affected by Primordial Dwarfism to reach their full potential in life.

Facilitate research into the causes of Primordial Dwarfism and the complex life threatening medical issues faced by individuals affected by Primordial Dwarfism.

Raise awareness amongst the general public, medical professions, support services and other interested parties.

Facilitate family support meetings and connections to highlight life issues, concerns and remove the isolation families feels.

Identify those with Primordial Dwarfism and bring them into contact with other individuals, families and specialists.